resources for patients, caregivers, and families
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patient support
YOU SHOULD KNOW
HELPFUL HINTS FOR PANCREATIC CANCER PATIENTS IN CONNECTICUT
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If you have a terminal diagnosis and worked a total of 40 quarters (or 10 years) you may be eligible for Social Security Disability (SSD). This is retroactive to the date of your diagnosis.
If you are already collecting social security, you may be able to collect SSD in a matter of weeks.
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If you do not have health insurance, try Health Reinsurance Association (Glastonbury). This is a high-risk pool. It is expensive but less expensive than paying for treatment out of pocket. Call (800) 842-0004 or visit www.hract.org
Check your health insurance benefits. You may be eligible for home care and hospice services. Medicare covers hospice benefits. However, if you need to go to a Skilled Nursing Facility (SNF), Medicare does not pay for room and board for hospice.
To go to a SNF under traditional Medicare you must have a qualifying 3 day inpatient hospital stay, however, managed Medicare plans (Connecticare VIP, United Health Care Advantage, and Blue Cross Mediblue) do not require an inpatient stay.
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Some private insurance will pay for inpatient and home hospice. Check your plans.
If you have a home care/hospice benefit, ask your home care agency about hospice volunteers. If family members are not available, hospice volunteers may be able to help with transportation, errands or staying with you.
Your doctor does not have to refer you for homecare. You or your family may refer you to home care. The home care agency will contact your doctor for service orders.
financial assistance
(860) 521-0500
CathyLou@RonFoleyFoundation.org
Direct financial support from the Ron Foley Foundation. Contact your doctor, nurse navigator, social worker, or Cathy Lou King via email for more information.(508) 261-0630
The Joe Andruzzi Foundation's (JAF) Financial Assistance Program supports basic, household, monthly expenses such as rent/mortgage, car payments or insurance, and utilities.(800) 813-HOPE (4673)
Limited financial assistance for cancer-related costs and co-paysPatient Advocate Foundation Co-Pay Relief
Health equity funds offering financial support for medication and treatmentNational Pancreatic Cancer Foundation
One-time grants of $500 for patients who qualifyhealth and wellness
Healthy recipes, blogs, and webinars focused on lifestyle choices and diet by Julie Lanford, MPH, RD, CSO, LDNA twelve-week wellness program for cancer survivors to help build muscle strength, flexibility, and endurance. Sponsored by the YMCA.(860) 953-9642
Restorative and gentle yoga classes for pancreatic patients and caregivers, free of charge through their WHY Outreach programSymptom relief and support through therapeutic massage. Offering a preferred practitioner directory for oncology-trained massage therapists.(860) 839-0034
For Cancer Patients in Connecticutsupport groups
Inspire Pancreatic Neuroendocrine Tumor Support Group and Discussion Community
Online support/discussion group specifically for Neuroendocrine PancreaticCleveland Clinic 4th Angel Online Mentoring/Support Program
(866) 520-3197
An interactive approach to cancer support in which patients and caregivers are matched with trained volunteer mentorsComplimentary counseling for cancer patientsmanagement tools
An app that allows you to securely record and transcribe your doctor’s appointments so that you can easily go back and reference them, and share with loved ones who were not able to attend in person.caregiver and family support
support groups
Resources and peer support for caregiversFree peer-to-peer support and resources for kids affected by their parent’s or guardian’s cancer. Offers a family cancer support kit.Free week-long, sleep-away camp in Massachusetts for children ages 6-18 who have been impacted by a parent’s cancerhealth and wellness
A central place for caregivers to coordinate meals and help from friends and familyAn online resource that allows friends and family to organize homemade meals for someone in needFree homemade meals delivered to your doorChef-curated meal kits, prepared and ready meals, delivered to your door. New subscriptions receive 30 - 50% off.Locally-prepared meals delivered to your doorHealing Meals Community Project
A volunteer-based organic meal delivery program in the Greater Hartford, CT area for individuals and families dealing with a health crisis